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Families Rutland Information Service

Motor Neurone Disease Association

The Leicestershire and Rutland Branch of the MND Association continues the fight to maintain and improve the levels of care for those who are living with the disease as well as helping to fund vital research programmes.

Below are listed some of the ways we try to make a difference for people affected by MND in Leicestershire and Rutland.

Equipment and Financial Support

The MND Association and local Branch will help with providing equipment where necessary. Requests for support are always dealt with discreetly and sympathetically.

Association Visitors

Our trained volunteer visitors offer caring, informed support to people with MND and their families.

They work as part of a local team visiting people with MND and their carers at home or keep in touch by telephone or email.

They provide an invaluable link for people living with MND, keeping them in touch with the MND Association and proactively signposting them to various other sources of help.

They also offer support at the MND clinics held at LOROS, the Leicestershire and Rutland hospice. The development of the multi-disciplinary support and palliative care project means that we and the professional team are all working together to support people with MND

Friends and Family Meetings

Regular informal meetings are held for all those currently caring for or involved with people living with MND. They provide an opportunity like-minded folk, MND clinical specialist nurses, dieticians, speech and language therapists and branch members to meet for a chat and friendly support.

Social meetings

The Branch holds regular informal open meetings at LOROS and other venues throughout the year to support those affected by MND. Friends and branch supporters are also welcome! . A separate group for "past carers" has recently been formed.

Who to contact

Contact Name
Jenny Holmes-Shuttlewood
Contact Position
Branch Contact / Association Visitor Coordinator
0116 251 5496
07973 478 358

Where to go

Motor Neurone Disease Association
P.O. Box 246

These monthly support meetings are for family and friends of people with Motor Neurone Disease. For more information, or if you have any ideas for topics or venues for future meetings, please contact the MND Nurses Jane or Jo on 07921 545557 (ansaphone) or 0116 2318402 (office)

This page was last updated on: 16/07/2020

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