The Leicestershire and Rutland Branch of the MND Association continues the fight to maintain and improve the levels of care for those who are living with the disease as well as helping to fund vital research programmes.
Below are listed some of the ways we try to make a difference for people affected by MND in Leicestershire and Rutland.
Equipment and Financial Support
The MND Association and local Branch will help with providing equipment where necessary. Requests for support are always dealt with discreetly and sympathetically.
Our trained volunteer visitors offer caring, informed support to people with MND and their families.
They work as part of a local team visiting people with MND and their carers at home or keep in touch by telephone or email.
They provide an invaluable link for people living with MND, keeping them in touch with the MND Association and proactively signposting them to various other sources of help.
They also offer support at the MND clinics held at LOROS, the Leicestershire and Rutland hospice. The development of the multi-disciplinary support and palliative care project means that we and the professional team are all working together to support people with MND
Friends and Family Meetings
Regular informal meetings are held for all those currently caring for or involved with people living with MND. They provide an opportunity like-minded folk, MND clinical specialist nurses, dieticians, speech and language therapists and branch members to meet for a chat and friendly support.
The Branch holds regular informal open meetings at LOROS and other venues throughout the year to support those affected by MND. Friends and branch supporters are also welcome! . A separate group for "past carers" has recently been formed.